"In this world you will have trouble. But take heart! I have overcome the world.”

-
I will keep in perfect peace He who trusts in me. Isaiah 26:3

I've mentioned this verse before but I'm reminded of it daily. Today I'm taking Case to Johnstown to meet a surgeon about the posibility of placing a G-tube. As I said before, the g-tube doesn't bother me. At this point I'm practically ready to put it in myself.;) Case has lost weight in the past couple of weeks and I know that can't be good. My mind tends to wonder and worry,though. I have an app on my phone that has a short "lesson" each day.  It's funny how perfect today's lesson is. To sum it up, it told me not to worry. Jesus knows this big picture and has already taken care of today and always.:)  It's time to trust God completely. G-tube or no G-tube. Vomiting or no vomiting. Whatever this and every day brings it is God who is in controll not me. Sometimes people confuse trusting God with God fixing everything. I believe everything is going to be okay. And by "okay" I mean that I will blindly trust His will to be perfect. I will alow Him to do as He thinks best although it doesn't always meet my previous standards of "best". After all, Case is God's. :)

This verse is beautiful and sums up everything I was trying to say.:)


"I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world."
John 16:33

Comments

  1. DanelleNovember 15, 2011 at 8:44 AM

    When I was about 13 I volunteered at the YMCA to help take care of people that couldn't take care of themselves. It was a 2 week camp for them so they could have fun with other people and just have fun in general. Anyways, it was my job for those to weeks to take care of a little boy "Jason" I can't remember his name sadly :( He was about 8 years old and he was just the most brilliant little kid ever. He hardly spoke and he was such a little kid for being 8 years old. Well, I found out that I had to feed him through a tube in his stomach. Every day when I hooked up his pediasure (pretty sure that's what it was)we would say is was pizza or something, and one day I actually got a pretty good laugh out of him. It made me cry... writing this even now makes me cry. What I'm trying to say is, that little boy left a huge imprint in my life and I have a feel Case is going to do that with a lot of people. The tube for this little boy didn't seem to bother him and us laughing and have a good time every time I fed him made it much easier for both of us. I hope if Case does have to get this he can start gaining lots and lots of weight :) Love you guys! xoxo

    ReplyDelete
  2. TestNovember 16, 2011 at 11:57 AM

    I needed that verse today. Good luck today and at your upcoming appointments too!

    ReplyDelete

Post a Comment

Popular posts from this blog

Half-Brained Thoughts from a Special Needs Momma.

-
Image
Top ten thing's I've seriously considered doing when I'm low on sleep and patience. 10. Throwing Case's feeding pump out the window. Really. Some days that thing must beep hundreds of times. He's carrying it around constantly. It beeps when it's empty. It beeps when the tubes twist, kink or clog. It's an annoying, beautiful, life giving machine that I have a love-hate relationship with. 9.  Just driving. And driving. And driving. Alone. With the music blasting. I'd come back eventually but only once I'm well rested with a manicure. 8. Taking the 10+ (front and back) partially filled out papers asking me if my son is "still medically complex and if so to prove it", crumpling them up and leaving them on the doorstep of the office with his bottles of meds, tubes, pump, syringes, all his medical records and maybe some vomit with a note that reads, "Yes, he is still very much the same as he was the last time I did paper work to pr...
Read more

About Case.

-
Image
Case is our fourth child. He has 3 sisters. At 22 weeks pregnant I had a routine ultrasound. The tech seemed calm, ordinary. She said we were having another girl. We named her Parker. "She" was healthy. Typical. Fine. A week or two after that "normal" ultrasound we got a call. There was a spot on our "baby girl's" heart and one on "her" kidney. Not a big deal. At about 25 weeks of Pregnancy, We had a second level sonogram about an hour away from our home.  I was told our baby would be different. Very different. It's limbs were way behind in growth. It had heart problems, kidney problems, and was small. Very small. The doctor strongly suspected Down syndrome or Trisomy. He did an amnio. I cried. He told me this was not my fault. I was doing everything I could. The baby was just made different. Two and a half weeks later, I got a call. I was there, in that hotel. On a mini "getaway" with the family. The doctor called an...
Read more

I have a confession.

-
Image
I have a confession. I'm tired of fighting the food battle. For all of the 17 months Case has been alive, I've been fighting my butt off to get this child to eat right and grow well. The food battle started as soon as Case was born. They whisked him away from me via helicopter (even though we were only minutes away in Magee Women's Hospital) to Pittsburgh Children's Hospital. Once he was gone, the food battle started. I pumped around the clock every three hours to have milk for the time when they allowed me to nourish his tiny body with bottles then with breast. If only it would have been that easy. He was about a week old when they first let him eat, after a day or so they stuck a tube down his nose. Eventually they let me try to nurse. He was too weak. Once he was sent home, they took the tube out of his nose and I was feeding him fortified breast milk every 3 hours (around the clock). I was also pumping. This went on until I could no longer keep my milk (around 3 m...
Read more