Tuesday, August 20, 2013

Dear Child of Mine


Dear beautiful child without a voice,

I will be your voice. I will not back down, I will not give up, until my last breath...I will fight for you. I will not let a man in a suit, behind a desk tell me what is "medically necessary" for you. He has not cried for you, slept in a chair in the hospital for you or fought for you. He does not know your pain nor has he seen your strength and with all due respect, I don't think he'd care to but I have...and I will continue to because i love you with every fiber of my being. For the rest of my life I will fight for your needs to be met because the sad reality is that children as special as you don't always get treated as the kings and queens that they are. It's true, dear boy and that's why they were given mommies like yours. To be their voice, to fight for meds and treatments and beds....Don't worry sweet prince, I will do all that I can for as long as I can so that your sweet, soft voice can be heard. Even when I'm scared I will stand. In a  court room, in a Dr.s office and in the class room I will stand up for what I believe in. Because I believe in you. 

Love always,

Mommy


 

 


 
 
 
 

Sunday, August 11, 2013

Dear beautiful baby,


One of Case's fans asked a few days ago about what my biggest fear for Case's future is. Honestly, I don't think about it much. I've tried since pre-birth to take one day at a time but I know what it is. My biggest fear for my medically complex, special needs son is that he will feel left out, "defective". I will always be beside him, cheering him on...Telling him that different isn't defective. Different is beautiful!! 


Dear beautiful baby,

After you were born, God broke the mold. No, really. There is no one else like you, anywhere. You were made different. Yeah, different but that's a GOOD thing. You are not weird or odd.  In fact, your differences make you even more beautiful than I ever could have imagined. Not only on the outside but on the inside too. When God put you together he placed your parts with great care and made them super special, kind of like Spider-Man's web shooting wrists and Superman's extra strong arms...You see, beautiful baby, he knew you were strong enough to be made just like you are and not be ashamed. Never, ever feel ashamed to be you. Because, you are so beautiful. And, baby once you start to notice you are different then the rest, hold your head up high because when you, BEAUTIFUL you were made, God broke your mold and THAT is something to be proud of. Don't ever, never ever let someone tell you different. 

Love,

Mommy