A Very Special Case.

God, I hate worrying. It's like an involuntary emotion. It lurks up on me, and before I know it it's three am, and I'm playing in my head the words I'll say to my son's new insurance rep about how unfair his new policy is or my mind is still stuck on 6 million what ifs. It steals my peace. It steals my sleep and brings zero value to my life. A pointless, involuntary, annoying emotion that we could easily live with out. And yet, it seems no matter how many times I tell myself I won't worry, I'm doing it before I even realize it. I used to worry about things like stomach bugs and unfinished homework. Now I have graduated to unfair HMOs, birth defects, and kidney failure in a small boy.The newest prospects of worry are unresolved stomach issues in Case's tiny belly, slow growth, his HMO taking away some of his nursing (they're being stubborn dumb dumbs)...and the list goes on. I've concluded that worry is worthless, and if I allow everything that co...

"This is not the end of the road. You don't want to see the end of the road...I have, and it's not pretty"-Dr. Ruldolf's response to me saying, "I just really feel like we are at the end of the road..." We're doing it (by we I mean Case). He's getting the GJ, this Friday. It's not the end of the road but the beginning of one. A new adventure. The GJ will help him grow. The food running straight into his intestines and bypassing his stomache means that it will absorb correctly. And if all goes well, the vomiting will cease, and Case will steadily and painlessly grow. This GJ will be put in at radiology while Case is awake. They will take the Mic-key button he has now out and put a new something (not sure what it is called) in. It will have 3 ports. One that feeds food to the stomache, one that feeds food to the intestines, and one to fill the balloon. If it gets ripped out, we can not put it back in. We will drive to Pittsburgh, and they will ...