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Showing posts from May, 2013

Until death do us part.

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I've read over and over again about the high divorce rate in parents of special needs/medically fragile children. 75% or 3 out of 4 married couples with medically compromised/special needs, etc. children get divorced. Yes, 3 out of four meaning there is only a 25% chance Dan and I will stay married through the storms of this life we've been chosen for. Being married is hard. Being married in stressful circumstances is harder...When we said our vows, we said we'd love and cherish each other "until death do us part". We didn't know the storms that would be ahead but we committed to each other for better or worse, for richer or for poorer.... We decided we'd always be together and together we are. I'm not saying it's easy raising kids together. It's not, it's hard. Add medical bills, surgeries, long hospital stays, negative bank account balances and all the other "goodies" a miracle like Case brings and some days you wonder how y

Oh, the places you'll go!

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Oh my, boy. My sweet, special boy. You've been though a lot in your 28 months on earth! Even making it to earth was more than you were thought to do! I know that it hurts more than it should to be you. You feel pain daily not like a two year old should but you are happy deep with in your soul and it shows. You've been cut open more times in 28 months than most are in a life time! You are poked, prodded and shot with needles so much that you often don't cry anymore but boy, you're a blessing! You've been in homes all over the nation and when your face grace's Facebook's news feed people smile. People all over the world love you because you're spirit is bright and you restore hope to they're souls. When they look at you, they feel strong because you show them what strength is. Oh, boy you are still going, I know and I can't imagine all the places you'll be in your lifetime. Thank you for bringing me along. For helping me grow.  I love you bo

And I will fight for him...

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And I will fight for him. He is my son. He's different from your son but the same too. He wants what everyone else wants; to live life to the fullest. To be respected. Loved. He deserves all the opportunities your son will have. He was made different. He is fed differently and his body doesn't work like everyone else's but his spirit is bright and his heart (although its full of normal variants and minor defects) it loves and feels love. Not everyone sees him like I do. He's been looked past and denied for the things I know he needs but I will not stop. I will fight and then I'll fight some more. Excuse me, insurance companies, doctors that said he won't live long if I seem pushy but push I will when I need to. You would too if he was your son. You would look deep in his soul and see it shine. You'd know his future holds many trials and he won't be able to play sports or trade treats at lunch and that would break your heart. That would make you want to