Cute video!
Case puts the dish towels away for me every time. It's so cute! This is a little dark but worth the watch.:)
Posts
19 Months Old Today.
This kid is an adventure, every day brings joy, grace and blessing ( oh and sometimes tears). This tiny man (14 pounds 10 ounces and 26 inches long) has taught me more about life, love and strength than any pastor, teacher or book ever has. He has pushed me to almost breaking and kissed me when I cried. He brought this family to a new normal and has shown us how special, "special needs" really are. He has taught us to live in today and deal with tomorrow when tomorrow comes. He is our blessing, our lesson and our tiny teacher.;) And now for an update on the little-big man: Case can walk and does sometimes (probably about as much as he scoots.;) He really doesn't talk. He can say a few words but rarely does. We have a consult with a Speech Therapist, August 30th. He does communicate well with pointing, shaking his head "no" and an adorable new nod for "yes". He seems to be tolerating his J feeds of Nutren JR. He does still retch some mornings for no ...
An adventure.
Who doesn't love an adventure? We do! And it's a good thing cause Case is a tiny ball of adventure! Yesterday evening around 7pm I laid him in bed. He was super cranky so he cried for a few minutes at first. At around 8 I went in to hook up his feed. He was sound asleep with his Mic-Key button at the opposite side of the bed and a hole in his belly. When a Mic-Key falls out, (or gets yanked out) it's important you replace it immediately so the hole doesn't close. The hole had started closing making it difficult to put a new Mic-key in (after two tries I was able to get it in). He was fussy and the feed seemed to have trouble going in. I only ran it for a minute or so before I realized if the hole started closing the inside of the stomach could have too making the Mic-Key in the wrong place, etc. I called Case's surgeon (he gave me his cell #) but he didn't answer. I then called the dr. on call at Children's. We were told to go to the Altoona Hospital ER to h...
