A Very Special Case.

Stop letting your child’s milestones make you sad. Your kids are growing. There are things you’re going to miss. You’ll miss their tiny toes and the way they let you hug them in public. You’ll miss picking out their outfits and the way they said “tickledy” instead of "that tickles". I get it, I do but I also see the other side. You see, I live in a community where moms don’t get all of that or any of that....They don’t get first words and first bites. First holidays aren’t always spent passing their baby around while they beam with pride and joy. Sometimes, there are no words at all and first holidays are spent in hospital rooms. Sometimes, first days of school look different and sleepless nights don’t end. In this world we celebrate milestones and next steps because we didn’t know we were going to get them and some of us never did. So, momma don’t let them growing make you sad. Let it be a reminder that life is short and full of new phases.  They are growing up and that

Childhood chronic illness does not discriminate. If you have ever walked the halls of any Children's hospital, you have seen this. It doesn't matter your race, religion, background or social status. Chronic illness doesn't care. It comes for you and leaves no one in your family untouched. This, of course is the same for adults, I just happen to be the mother of an 8 year old with a chronic intestinal disorder along with a slew of other illnesses and congenital defects. He was born chronic and is growing up chronic. For us, the reality that we are all in this together despite our differences started while Case was still in my womb. I can vividly remember the faces of other women in the high risk waiting room at a speciality Women's hospital 2 hours from home. Their faces were worn and eyes sad but hopeful. I listened as a mother pleaded with the medical team to let her continue the rest of her pregnancy in peace with out all the high risk interventions now that they know