A Very Special Case.

Grab a cup of coffee and use the restroom if you need to 'cause this may take awhile. There's a lot of little things going on with the big guy.:) Weight: Gah! Not great news in this department...he's had little to no weight gain and sometimes losses. Why? No one knows. Do I think he's the incredible shrinking man? I sure as hell hope not! ;) It's discouraging to see the numbers on the scale go down even though he's being fed 20 out of 24 hours a day. His dietitian is looking into adding a supplement to his tube feedings. He now weighs 14 pounds 8 ounces. Milestones: He's walking full time now! Yay and too adorable! He speaks very rarely, but communicates well through body language and grunts.;) Speech therapy may be starting in September. He eats and drinks a little each day, and I'm encouraged by that. By little, I mean a few bites and sips. He's been exhibiting some anxiety and clinginess to me. He has a hard time with people he doesn't s...

I wrote this a few days ago and am just now getting around to posting it.:) Good day Case fans! It's a wonderful day in the land of All Things Case.;) Case weighs 14 pounds 3 ounces. He can "crawl" (or something like that:) the WHOLE WAY up the steps with out any help. Up until yesterday he only went a step or three, got tired and I would help him the rest of the way. He also consumed all of his morning calories by mouth! Big freaking deal! He did, however vomit afterwards but that's okay, at least he still has the desire to take food and drink by mouth. He was also fitted for an adaptable stroller on Thursday. If his insurance approves he'll get it. It's really cool and going to be super helpful. Not only will it have more cargo room and be more comfortable it will have an IV poll so I can properly run feeds and hang the vent bag. It will recline at the right angle to prevent aspiration. All and all it's going to be awesome and will make our long days ...