Fan-freakin-tastic.

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I wrote this a few days ago and am just now getting around to posting it.:)


Good day Case fans! It's a wonderful day in the land of All Things Case.;) Case weighs 14 pounds 3 ounces. He can "crawl" (or something like that:) the WHOLE WAY up the steps with out any help. Up until yesterday he only went a step or three, got tired and I would help him the rest of the way. He also consumed all of his morning calories by mouth! Big freaking deal! He did, however vomit afterwards but that's okay, at least he still has the desire to take food and drink by mouth. He was also fitted for an adaptable stroller on Thursday. If his insurance approves he'll get it. It's really cool and going to be super helpful. Not only will it have more cargo room and be more comfortable it will have an IV poll so I can properly run feeds and hang the vent bag. It will recline at the right angle to prevent aspiration. All and all it's going to be awesome and will make our long days at Children's much easier.:) The home nursing is going well too. Can I just say, I love having 8 hours of uninterrupted sleep? I still hear him but then hear a nurse come sup the steps and i know he is in great hands! I feel so blessed to have such wonderful help. I have really fallen in love with his nurses and of corse, they all adore him!

Dan and I are taking him to Pittsburgh Wednesday evening and staying the night. He has a long day of appointments that start early Thursday morning, the twelfth. Urology (with his surgeon), GI and Endocrinology. He has to go back again the 30th to the Cranial facial clinic to check his throat.


Good day Case fans! It's a wonderful day in the land of All Things Case.;) Case weighs 14 pounds 3 ounces. He can "crawl" (or something like that:) the WHOLE WAY up the steps with out any help. Up until yesterday he only went a step or three, got tired and I would help him the rest of the way. He also consumed all of his morning calories by mouth! Big freaking deal! He did, however vomit afterwards but that's okay, at least he still has the desire to take food and drink by mouth. He was also fitted for an adaptable stroller on Thursday. If his insurance approves he'll get it. It's really cool and going to be super helpful. Not only will it have more cargo room and be more comfortable it will have an IV poll so I can properly run feeds and hang the vent bag. It will recline at the right angle to prevent aspiration. All and all it's going to be awesome and will make our long days at Children's much easier.:) The home nursing is going well too. Can I just say, I love having 8 hours of uninterrupted sleep? I still hear him but then hear a nurse come sup the steps and i know he is in great hands! I feel so blessed to have such wonderful help. I have really fallen in love with his nurses and of corse, they all adore him!

Dan and I are taking him to Pittsburgh Wednesday evening and staying the night. He has a long day of appointments that start early Thursday morning, the twelfth. Urology (with his surgeon), GI and Endocrinology. He has to go back again the 30th to the Cranial facial clinic to check his throat.

That's all the news I've got for now. I'll keep you all updated.:)That's all the news I've got for now. I'll keep you all updated.:)

Trying out one of the strollers.:)

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