Tuesday, June 26, 2012

He's got a little special in him.

Case did GREAT during his very busy two days at Children's. Oh, and it turns out I am fully capable of driving to, from and in Pittsburgh (who would have thought?:). He rocked his full day Thursday and still had energy to visit his buddy Ramsey in the hospital. Ramsey is my friend Lisa's son. Lisa and I met at the RMH while our boys were hospitalized in the winter of 2011. Sweet Ramsey had to have another surgery, and I was blessed to visit him and his amazing family during his recovery.

All of the appointments went well and our day ran smoothly. Jane, our sweet nurse, was wonderful to have along and really admired Case's strength and stamina. For such a little guy, he does beyond great. He didn't even cry when they took blood! Friday was also a great day for our great boy. We waited for hours to get his G tube changed to a GJ. That also went well. We were shown how to use it and told again we need to head straight to Children's if it gets pulled out. Like I said in my previous post, Case had a great weekend too! Probably the best in  a long time. He didn't vomit or retch much and seemed to handle the new J feeds very well. But Sunday night and Monday were rough for our guy.  He ended up retching several times Monday morning and bringing up stomach bile a few times. He had a previously scheduled pediatrician appointment so we took him. The doctor wasn't sure what was going on but hoped it was maybe teeth. Case does have teeth coming in and had a much better day today. While we were at the pediatrician, three little kids saw Case scooting with his backpack. They were very curious and asked their mother about him and his pack. She smiled at me and said to her kids, "That's a feeding backpack and that little boy has a little special in him." That lady may never how how special that made me feel and that her kind words made my day bright. She is right. He has a little special in him and is worth all the trips, all the appointments, all the time, all the money and all the vomit covered shirts, because I am raising a boy full of special and I'd have it no other way.

 "Oh, this is how it starts, lightning strikes the heart
It goes off like a gun, brighter than the sun
Oh, we could be the stars, falling from the sky
Shining how we want, brighter than the sun

I've never seen it, I found this love, I'm gonna feed it
You better believe, I'm gonna treat it better than anything I've ever had
Cause you're so damn beautiful"
Having dinner at the RMH with Ramsey's brother Reed.

Big man and his bag.