In case you were wondering this is what all those supplies look like all packed up!
I didn't have anything thing to "prime" (when you pump feed you need to fill the long tube with formula so you aren't pushing air into Case) into so I primed out the window.:)
My back seat helper.:) We run 5 feeds a day for about 45 minute through the pump and one continuous feed for 6 hours at night. So, it felt like a lot of the car ride consisted of measuring, adding Duocal, shaking, priming, feeding and of corse...vomit. He retched and vomited 3 times before we even got to Brezewood (about 50 minutes from our home) on the way to the beach. We stopped at a rest stop in Breezewood so I could clean a vomit covered toddler and his poor, stinky car seat.
And the vomit didn't stop with the car rides. It continued in the hotel and once we got to the beach. Poor guy seems almost used to it by now.
Once we got to the hotel the first thing we did was SWIM! Case only swam for 10 minuted bofre it was time for another feed. So, what did I do? Naturally I hooked him up and his daddy held him at the steps. Being tube fed shouldn't mean missing out on life it's just a different way of living!
We didn't have his IV pole so we fed him with his Pumpkin Pack (the adorable monster bag you see) or without.
I even fed him on the beach! I of corse kept his stoma (the hole in Case's body that the Mic-key is plugged into) clean and sand free.
He ate. We ate.
One night the medicine port came open on his tube (I forgot to tape it closed) and his feed ended up in his bed. Ew.
And that is all for this particular Tubie Adventure. I hope you enjoyed it and remember I am not a doctor just a mom of a tube fed child. I take the advice of some pretty rad doctors and use my maternal instinct when it comes to the medical care of my son. As always, consult your doctor when it come to your tubie's care.:)