A VERY Special Gift!

-
Tomorrow is the big day! The charity ride benefitting Case McNulty (YAY) and Tiffanie Even's is TOMORROW! I am SO excited. I have met and grown to love an INCREDIBLE group of people. Through out the year the Burgi's low Life Riders work tirelessly to put together and raise money for a 100 mile motorcycle ride ending in a great big PARTY. They say (and I quote) :it's for the kids." Kids they never met. Kids they know have many needs, health wise and finically. Kids that get pocked, cut open, stay in hospitals and are sick. They really "do it for the kids" and it shows. Some of the kindest, most generous people I've ever met ride motorcycles and we are blessed beyond words to know them! THANK YOU LOW LIFE RIDERS and all who volunteered, donated and ride for this very special cause!



For the non-locals:
If you would like to donate to a good cause, visit their website by clicking here or their facebook page.

For the locals:
There is still time! If you want to attend the ride and or the after party, you can register at Blair Candy between 8:30-11 am tomorrow morning.

  • Sunday, Sept 2
    Benefiting Case McNulty and Tiffanie Evans
    Registration starts at 8:30 at Blair Candy Company, 3421 Beale Ave, Altoona (Former Imler's Bldg)
    Opening Ceremonies begin at 10:10 am
    Kickstands up at 11 am sharp!
    Escorted 100 mile ride thru Central PA
    Ride concludes at Glenn's Place, Claysburg, with a dinner from Holland Brothers and live bands.
    Registration is $20 per rider, which includes a t-shirt.

Posts



Comments

Post a Comment

Popular posts from this blog

Half-Brained Thoughts from a Special Needs Momma.

-
Image
Top ten thing's I've seriously considered doing when I'm low on sleep and patience. 10. Throwing Case's feeding pump out the window. Really. Some days that thing must beep hundreds of times. He's carrying it around constantly. It beeps when it's empty. It beeps when the tubes twist, kink or clog. It's an annoying, beautiful, life giving machine that I have a love-hate relationship with. 9.  Just driving. And driving. And driving. Alone. With the music blasting. I'd come back eventually but only once I'm well rested with a manicure. 8. Taking the 10+ (front and back) partially filled out papers asking me if my son is "still medically complex and if so to prove it", crumpling them up and leaving them on the doorstep of the office with his bottles of meds, tubes, pump, syringes, all his medical records and maybe some vomit with a note that reads, "Yes, he is still very much the same as he was the last time I did paper work to pr...
Read more

About Case.

-
Image
Case is our fourth child. He has 3 sisters. At 22 weeks pregnant I had a routine ultrasound. The tech seemed calm, ordinary. She said we were having another girl. We named her Parker. "She" was healthy. Typical. Fine. A week or two after that "normal" ultrasound we got a call. There was a spot on our "baby girl's" heart and one on "her" kidney. Not a big deal. At about 25 weeks of Pregnancy, We had a second level sonogram about an hour away from our home.  I was told our baby would be different. Very different. It's limbs were way behind in growth. It had heart problems, kidney problems, and was small. Very small. The doctor strongly suspected Down syndrome or Trisomy. He did an amnio. I cried. He told me this was not my fault. I was doing everything I could. The baby was just made different. Two and a half weeks later, I got a call. I was there, in that hotel. On a mini "getaway" with the family. The doctor called an...
Read more

I have a confession.

-
Image
I have a confession. I'm tired of fighting the food battle. For all of the 17 months Case has been alive, I've been fighting my butt off to get this child to eat right and grow well. The food battle started as soon as Case was born. They whisked him away from me via helicopter (even though we were only minutes away in Magee Women's Hospital) to Pittsburgh Children's Hospital. Once he was gone, the food battle started. I pumped around the clock every three hours to have milk for the time when they allowed me to nourish his tiny body with bottles then with breast. If only it would have been that easy. He was about a week old when they first let him eat, after a day or so they stuck a tube down his nose. Eventually they let me try to nurse. He was too weak. Once he was sent home, they took the tube out of his nose and I was feeding him fortified breast milk every 3 hours (around the clock). I was also pumping. This went on until I could no longer keep my milk (around 3 m...
Read more