He was singing and smiling.

-

I was out to breakfast with Dan and the kids this weekend and one of the servers (who absolutely loves Case) stopped to chat. As she was enjoying Case and high fiving him she asked about his size and it came up that we take him to Pittsburgh Children's hospital often for checkups. She said she goes with her daughter and grandchild who has Autism. The lady said that being at Children's is a great reminder of how good she really has it. Autism is not something her and her daughter had hoped their sweet child would have to deal with but to them it is manageable and could be a lot worse. She reminded me of a night towards the end of Case's stay at the hospital. I was in the cafeteria by myself (Dan and the kids were gone for the week so Dan could work and go to school) and I was feeling sorry for myself. I was tired. Done. I wanted to take my baby and worn c-sectioned body home. During my woe-is-me moment I saw a very ill girl, probably early teen years. She looked close to death as she slouched down in her wheel chair. I looked up to see who was pushing her. I figured whoever it was probably looked a mess. I thought a would see a tired face full of worry and greif. I did not. What I saw was a strong man (I assumed her father) singing. He was singing and smiling. What a humbling experience that was. I kissed Case's sweet face just a few extra times that night and thanked God that all I was dealing with was an "inconvenience".


Here's the sweet boy eating soft candy corn and sporting his new haircut. :)

Comments

  1. DanelleNovember 9, 2011 at 8:57 AM

    This made me cry. Those are the things I live by. Anytime I feel like pitying myself over something little I remind myself that I have a beautiful life, a beautiful little girl, and I am just very fortunate and take nothing for granted. My family is forever thanking God for our wonderful life he has provided us... thank you for sharing such a beautiful story <3 you and your family are amazing and I am very lucky to have you guys in my life!!

    ReplyDelete

Post a Comment

Popular posts from this blog

Half-Brained Thoughts from a Special Needs Momma.

-
Image
Top ten thing's I've seriously considered doing when I'm low on sleep and patience. 10. Throwing Case's feeding pump out the window. Really. Some days that thing must beep hundreds of times. He's carrying it around constantly. It beeps when it's empty. It beeps when the tubes twist, kink or clog. It's an annoying, beautiful, life giving machine that I have a love-hate relationship with. 9.  Just driving. And driving. And driving. Alone. With the music blasting. I'd come back eventually but only once I'm well rested with a manicure. 8. Taking the 10+ (front and back) partially filled out papers asking me if my son is "still medically complex and if so to prove it", crumpling them up and leaving them on the doorstep of the office with his bottles of meds, tubes, pump, syringes, all his medical records and maybe some vomit with a note that reads, "Yes, he is still very much the same as he was the last time I did paper work to pr...
Read more

About Case.

-
Image
Case is our fourth child. He has 3 sisters. At 22 weeks pregnant I had a routine ultrasound. The tech seemed calm, ordinary. She said we were having another girl. We named her Parker. "She" was healthy. Typical. Fine. A week or two after that "normal" ultrasound we got a call. There was a spot on our "baby girl's" heart and one on "her" kidney. Not a big deal. At about 25 weeks of Pregnancy, We had a second level sonogram about an hour away from our home.  I was told our baby would be different. Very different. It's limbs were way behind in growth. It had heart problems, kidney problems, and was small. Very small. The doctor strongly suspected Down syndrome or Trisomy. He did an amnio. I cried. He told me this was not my fault. I was doing everything I could. The baby was just made different. Two and a half weeks later, I got a call. I was there, in that hotel. On a mini "getaway" with the family. The doctor called an...
Read more

I have a confession.

-
Image
I have a confession. I'm tired of fighting the food battle. For all of the 17 months Case has been alive, I've been fighting my butt off to get this child to eat right and grow well. The food battle started as soon as Case was born. They whisked him away from me via helicopter (even though we were only minutes away in Magee Women's Hospital) to Pittsburgh Children's Hospital. Once he was gone, the food battle started. I pumped around the clock every three hours to have milk for the time when they allowed me to nourish his tiny body with bottles then with breast. If only it would have been that easy. He was about a week old when they first let him eat, after a day or so they stuck a tube down his nose. Eventually they let me try to nurse. He was too weak. Once he was sent home, they took the tube out of his nose and I was feeding him fortified breast milk every 3 hours (around the clock). I was also pumping. This went on until I could no longer keep my milk (around 3 m...
Read more