And I will fight for him...
And I will fight for him.
He is my son. He's different from your son but the same too. He wants what everyone else wants; to live life to the fullest. To be respected. Loved. He deserves all the opportunities your son will have. He was made different. He is fed differently and his body doesn't work like everyone else's but his spirit is bright and his heart (although its full of normal variants and minor defects) it loves and feels love. Not everyone sees him like I do. He's been looked past and denied for the things I know he needs but I will not stop. I will fight and then I'll fight some more. Excuse me, insurance companies, doctors that said he won't live long if I seem pushy but push I will when I need to. You would too if he was your son. You would look deep in his soul and see it shine. You'd know his future holds many trials and he won't be able to play sports or trade treats at lunch and that would break your heart. That would make you want to fight harder to make sure his quality of life is as high as it can be for as long as he lives. You would lose sleep to thoughts of what else can be done and what other roads can be crossed to get him all he needs and most everything he wants because he is your son. He has a piece of your heart. So to you, insurance workers and staff, he may just be a number but to me, he is so much more. I will fight for him with everything inside of me and to those who fight with me. To his nurses, therapists and doctors, you are important. You are a blessing. Together, we can ensure our little man gets everything he deserves. He is our blessing. He is our special miracle. He is worth fighting for!
He is my son. He's different from your son but the same too. He wants what everyone else wants; to live life to the fullest. To be respected. Loved. He deserves all the opportunities your son will have. He was made different. He is fed differently and his body doesn't work like everyone else's but his spirit is bright and his heart (although its full of normal variants and minor defects) it loves and feels love. Not everyone sees him like I do. He's been looked past and denied for the things I know he needs but I will not stop. I will fight and then I'll fight some more. Excuse me, insurance companies, doctors that said he won't live long if I seem pushy but push I will when I need to. You would too if he was your son. You would look deep in his soul and see it shine. You'd know his future holds many trials and he won't be able to play sports or trade treats at lunch and that would break your heart. That would make you want to fight harder to make sure his quality of life is as high as it can be for as long as he lives. You would lose sleep to thoughts of what else can be done and what other roads can be crossed to get him all he needs and most everything he wants because he is your son. He has a piece of your heart. So to you, insurance workers and staff, he may just be a number but to me, he is so much more. I will fight for him with everything inside of me and to those who fight with me. To his nurses, therapists and doctors, you are important. You are a blessing. Together, we can ensure our little man gets everything he deserves. He is our blessing. He is our special miracle. He is worth fighting for!
Beautiful post!
ReplyDeleteWhat a blessed boy your son is, to have an amazing, passionate, dedicated mama like you. Your fight to make sure your son has what he needs is an inspiration. Thank you!!
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