A Beautiful Year. A Beautiful You.

-
2014 was a beautiful year. The good, the bad, the hard....It started with surgery #7 and ended with surgery #10. 
Case started school in January unable to draw a straight line and ended writing his NAME!



Case's biggest surgery of his life happened in May. His scull was taken out of his head and reconstructed....Not only did he rock it, but he excelled! His Chairi Malformation disappeared! He gained 7 pounds, spoke much more and ate more than ever once his brain starting growing properly!


Beautiful Case. He's worked so hard, grew so much and met some amazing people. 

 

Beautiful news casters..... 







Amazing men that changed our lives. 

This year held so many hospital trips, blood draws,appointments and tests. 




He rocked them all!

2014 was the year of the Taco! We finally made the plunge and adopted a dog from a local shelter in November. We named him Taco. He completed our little family. 




We've been so very blessed in 2014. It was hard. It was beautiful. It was one amazing year. Case was chosen to be a "Wish Kid."  We are in the process of his wish to go to Disney World being granted for April!



Throughout the hard....A surgery failed, a brain reconstructed, a dangerous Hypoglycimicic drop, several hospital stays, etc. etc. there were blessing unimaginable! Our community rallied together, our friends and family never left our sides. They put us back on our feet. They are our heroes. 






From news coverage to a billboard and parade, famous Case became more famous and our community never ceased to amaze us!









Because of our beautiful facebook community, our Johnstown community and all of our amazing friends and families these two little boys were able to collect 700+ Christmas ornaments for Children's Hospital and the Ronald McDonald house. 

Through the good times and bad, 2014 was a beautiful year with a beautiful Case! Thanks for being part of it!









Here's to one kick-butt 2015! Who knows, maybe we'll find Case's main diagnosis!
Either way, one thing is for sure, through the grace of God and the love of others, Beautiful Case is going to have yet another Beautiful year!!!









Comments

Post a Comment

Popular posts from this blog

Half-Brained Thoughts from a Special Needs Momma.

-
Image
Top ten thing's I've seriously considered doing when I'm low on sleep and patience. 10. Throwing Case's feeding pump out the window. Really. Some days that thing must beep hundreds of times. He's carrying it around constantly. It beeps when it's empty. It beeps when the tubes twist, kink or clog. It's an annoying, beautiful, life giving machine that I have a love-hate relationship with. 9.  Just driving. And driving. And driving. Alone. With the music blasting. I'd come back eventually but only once I'm well rested with a manicure. 8. Taking the 10+ (front and back) partially filled out papers asking me if my son is "still medically complex and if so to prove it", crumpling them up and leaving them on the doorstep of the office with his bottles of meds, tubes, pump, syringes, all his medical records and maybe some vomit with a note that reads, "Yes, he is still very much the same as he was the last time I did paper work to pr...
Read more

About Case.

-
Image
Case is our fourth child. He has 3 sisters. At 22 weeks pregnant I had a routine ultrasound. The tech seemed calm, ordinary. She said we were having another girl. We named her Parker. "She" was healthy. Typical. Fine. A week or two after that "normal" ultrasound we got a call. There was a spot on our "baby girl's" heart and one on "her" kidney. Not a big deal. At about 25 weeks of Pregnancy, We had a second level sonogram about an hour away from our home.  I was told our baby would be different. Very different. It's limbs were way behind in growth. It had heart problems, kidney problems, and was small. Very small. The doctor strongly suspected Down syndrome or Trisomy. He did an amnio. I cried. He told me this was not my fault. I was doing everything I could. The baby was just made different. Two and a half weeks later, I got a call. I was there, in that hotel. On a mini "getaway" with the family. The doctor called an...
Read more

"This is not the end of the road."

-
Image
"This is not the end of the road. You don't want to see the end of the road...I have, and it's not pretty"-Dr. Ruldolf's response to me saying, "I just really feel like we are at the end of the road..." We're doing it (by we I mean Case). He's getting the GJ, this Friday. It's not the end of the road but the beginning of one. A new adventure. The GJ will help him grow. The food running straight into his intestines and bypassing his stomache means that it will absorb correctly. And if all goes well, the vomiting will cease, and Case will steadily and painlessly grow. This GJ will be put in at radiology while Case is awake. They will take the Mic-key button he has now out and put a new something (not sure what it is called) in. It will have 3 ports. One that feeds food to the stomache, one that feeds food to the intestines, and one to fill the balloon. If it gets ripped out, we can not put it back in. We will drive to Pittsburgh, and they will ...
Read more