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Showing posts with the label Big boy

19 Months Old Today.

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This kid is an adventure, every day brings joy, grace and blessing ( oh and sometimes tears). This tiny man (14 pounds 10 ounces and 26 inches long) has taught me more about life, love and strength than any pastor, teacher or book ever has. He has pushed me to almost breaking and kissed me when I cried. He brought this family to a new normal and has shown us how special, "special needs" really are. He has taught us to live in today and deal with tomorrow when tomorrow comes. He is our blessing, our lesson and our tiny teacher.;) And now for an update on the little-big man: Case can walk and does sometimes (probably about as much as he scoots.;) He really doesn't talk. He can say a few words but rarely does. We have a consult with a Speech Therapist, August 30th. He does communicate well with pointing, shaking his head "no" and an adorable new nod for "yes". He seems to be tolerating his J feeds of Nutren JR. He does still retch some mornings for no ...

A very special poem.

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Our sweet special boy named Case Does all things at his own pace, Would not eat or grow His weight was too low, So we prayed and relied on God's grace. Making him eat was real tricky So they had to install a Mic-Key, From a bag and a tube Come nutrition and food, But some days it makes him real sicky. Anomalies, Case has a lot, Against all odds sweet boy has fought, He's become a town hero Regrets, we have zero, Through this blessing I birthed we are taught. I wrote this very special poem for our boy with the help of my friend Terri and her daughter. I entered it in a contest to win a pump back pack (see yesterdays post.:) Thanks to all who voted yesterday. Case did not win but a very deserving little boy did.:) If you haven't liked Pumpkin Packs on facebook yet you can click  here .  Like it. Look around. Buy an electronic gift card for your favorite tubie or sponsor a back pack for a needy tubie.:) Speaking of tubes, Case's has helped him get ...

You've come a long way, baby.

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Today Case is one. It's been one heck of a year. I wouldn't change one moment or take back one tear. Blessings came from rain drops that poured down like a storm. His healing came though pain. It felt like it took a thousand sleepless nights to know He's near.  This has been a beautiful year. I am thankful for every appointment. Every trip there and back. My talks with Dan. For Case's doctors. For the hard times and the easy. For the relationships and the many, many people Case has blessed. This little boy has been through more in one year then many people experience in a lifetime and all the while he has never stopped loving. Never stopped smiling. Never lost His peace. He is truly a gift. Case's aunt got him a birthday card and this is what it read: Here's to many more years of being bigger, stronger and bolder.